Kayla McKeon

Kayla McKeon

Manager of Grassroots Advocacy, National Down Syndrome Society (NDSS), National Down Syndrome Society (NDSS)

Kayla McKeon is the Manager of Grassroots Advocacy for the National Down Syndrome Society (NDSS) where she works to advance legislation beneficial to the Down syndrome community. Kayla gained experience working with Members of Congress as an intern for Congressman John Katko of New York. She was named NDSS Self-Advocate of the Year in 2016 and joined the NDSS staff the following year. As the first registered lobbyist with Down syndrome, Kayla is a spokesperson for NDSS and the Down syndrome community, participating in media and speaking publicly both nationally and internationally. Kayla is pursuing her associate degree at Onondaga Community College.


Kayla resides in Syracuse, NY with her parents and dog Bella. She is a Special Olympics athlete and former Special Olympics Athlete Congress member. In 2011, she competed in the Special Olympic World games in Athens, Greece winning silver and bronze medals. Kayla is active in her church, is an avid reader and loves swimming in her pool when the weather is warm.

Scroll to Top